It’s crazy sock day!!! I don’t have on my crazy socks but I am rocking my #downsyndromeawareness shirt! Most of the kiddos have on some crazy socks to show their support for their extra special siblings and the other extra special people who were gifted with an extra chromosome.
I’ll admit that when we first got the news it was unexpected and I was upset, terrified, and a bit nervous but we had previously been told that what they expected she had would be incompatible with life.
We were immediately sent to genetic counseling where we were given a list of all the reasons why we shouldn’t continue with the pregnancy as the baby’s quality of life would not be good and that it would be a burden on the rest of the family … that was until I told him that we already had a special needs child and that his quality of life was pretty good and that all of his siblings would agree that they love having him in their lives!
I knew that I wanted whatever time I could have with my little one whether that was 5 seconds, 5 minutes, 5 hours, 5 days, 5 years, or more. I wanted my baby to have a chance at life.
So when we got the call giving us the high probability of Down Syndrome with an extremely low possibility of the other conditions that they had originally said I was ecstatic! The doctor thought maybe I had misunderstood him when I was thanking him for the news… I told him I understood, he had given me HOPE. When he asked if I had any other questions for him I just asked about the gender and I learned that we were having a little girl! I was so excited to see this new training being made available to healthcare workers:
It’s normal to grieve over the child you thought you would have but don’t get stuck in that grief because ‘normal’ is just the setting on a dryer… each and every person has their differences and that is what makes us all unique and keeps life interesting!
I love the poem about Holland and it helped me a lot after our multiple diagnosis.
Shyanne and William definitely keep our lives interesting. Shyanne can light up a room with her smile while William can make a person laugh with his outgoing and crazy personality. We wouldn’t trade our two extra special kiddos for the world but we would change the world for them! God had a plan and He knew that we needed these two kiddos!
P.S.
It’s also National Tiramisu Day … at least in Treviso, Italy it is. I love this dessert but rarely get to enjoy it so I didn’t really need any excuse to give this recipe a try.
You can try it out too by checking it out on Mrs. Criddles Kitchen! We had most of the ingredients on hand but I did have to order some Rum extract on my Grocery Pickup. I also added a little extra coffee extract to the coffee I used. I also used double the monk fruit in place of sweetener that was called for.
It really is fairly easy to whip up and I can’t wait to try it out later tonight. I did sneak a few quality control checks in during the assembly so I KNOW that everything tasted pretty good by itself.
This is an extra special dessert to celebrate and extra special day! Tiramisu apparently means ‘cheer me up’ which is something our special kiddos do seem to have quite the knack for!
Have a blessed day!
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