The ‘Ten Fingers, Ten Toes’ Book Is a Game Changer!

I have done more than my fair share of research on Down Syndrome and ways to help with development when my older son came into our family. I never expected that ten years later we would be blessed with another very special addition. When we learned of her diagnosis I began researching more and buying more books geared towards babies and younger children.

We all know that our brains and central nervous system dictate all of our functions so I was terrified of her multiple diagnoses and many of the doctors were not very optimistic either. I knew I would need as many tools and resources as I could find to help her reach her full potential.

With certain disabilities like Down Syndrome and Dandy-Walker Malformation, the brain can be adversely affected. Both of these conditions usually cause some degree of developmental delays along with various health issues. The degree of disability will vary from individual to individual so there is no ‘one size fits all’ therapy program to use. When you add in the diagnosis of Hydrocephalus with chromosomal abnormalities and other birth defects there is an even greater chance of severe delays and disabilities.

Even with all of my other research, I’d never even heard of neuroplasticity training before Shyanne was born but I had been doing some research for therapy ideas when I came across this book. (Maybe I had read it somewhere but forgot?) I wish I’d had this book for my first child as I could’ve learned ways to help all of my children with their development.

Ten Fingers Ten Toes Twenty Things Everyone Needs to Know: Neuroplasticity for Children** by Karen Pryor PT DPT Ph.D. 

Continue reading “The ‘Ten Fingers, Ten Toes’ Book Is a Game Changer!”

Shyanne’s Bell Ringing at UF Shands Children’s Hospital

Clinic Visit

Shyanne had a quick clinic visit today for a dressing change and labs. Everything went well with the exception of one lumen is not giving blood return so well will have to have that addressed next week when we return for admission.

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Counting our blessings

This was actually meant to publish back in March but for one reason or another it didn’t. A lot has happened since then … the biggest thing being Shyanne’s leukemia diagnosis.

Hey everybody! We hope you all are doing well… everyone here is doing pretty good.

The kiddos have been catching up on school work. They’ve not been too happy to double up in some lessons but they are getting it done. One of the younger boys said that he knows we need to work a bit harder to catch up for the days when we didn’t do anything because we were going through a ‘crisis’. That just goes to show that kids know more than they let on.

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Our recent Amazon purchases

As you all know I’ve always been partial to Amazon because you don’t need to leave your house, or couch, to get what you need. While this isn’t always a good thing to have everything just a click away it has been very useful during this COVID pandemic. Here are just a few of our favorite purchases lately:

Baby

Isn’t this the cutest?
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