Special Needs Resources: Cerebral Palsy Toolkit

Recently, I came across a glitch on the blog that had caused the requests put through on my ‘Contact’ form to not be delivered to my email anymore. I found several questions and requests. I have made a ‘Frequently Asked Questions’ page to hopefully answer some of those. One of the requests was to post this special resource.

Finding out that you are expecting can be one of the most exciting times of your life, but it can also be very scary. We know from experience that things can be downright terrifying, especially when faced with the knowledge that your child may have special needs.

Our youngest daughter, Shyanne, was born with multiple diagnoses and health conditions. Before she was even born, the odds were stacked against her. The doctors never expected us to make it through the pregnancy, and things got very scary towards the end when both of our lives were at risk.

It felt like someone had taken our life and made a HUGE jigsaw puzzle out of it, then added some extra pieces in there that had to fit. Every time we thought we were making progress, someone would come along and mix it all up again or ‘find’ a couple more pieces that needed to go in. Her story was complicated, and no one knew what the big picture would even look like… but God did!

He helped us through that very emotional time, and even though we couldn’t figure out how we were going to make it all work, HE gave us a sense of peace. We had to hand it over to HIM and HE put the pieces in place… one at a time, to create a BEAUTIFUL masterpiece that we could have never imagined.

HE made a way when we couldn’t see one, and we have witnessed miracle after miracle in our daily lives… That is why we created her blog:

Sweet Shyanne: The little girl who could

Continue reading “Special Needs Resources: Cerebral Palsy Toolkit”

Do or Do Not, There is no try

I think I need to make a plaque or something with this inscription because it really does seem to fit this season we are in around here. This can be applied to so many areas of our lives and to our parenting journeys… trust me I know about parenting challenges.

I hear these things so many times from my kids…

I tried but I couldn’t do it.

I did make changes in my attitude but no one noticed.

Continue reading “Do or Do Not, There is no try”

Clinic Visit

Shyanne had a quick clinic visit today for a dressing change and labs. Everything went well with the exception of one lumen is not giving blood return so well will have to have that addressed next week when we return for admission.

Continue reading “Clinic Visit”

Shyanne’s Story: Unexpected News

Well, today (May 13) has been a bit on the emotional side. I’m not even sure where to start but many of you that have followed our blog know that this pregnancy has been full of surprises:

An Unexpected Journey

Sometimes You Just Need To Let The Tears Flow

Finding Joy In The Difficult Days

Our little Wonder Woman… some good news! Continue reading “Shyanne’s Story: Unexpected News”