We recently went to the local Flea Market for a family outing and we found a few interesting items… not as many as our last Flea Market shopping trip but still a few. We didn’t really have anything in particular that we were looking for… just some fun, quality time as a family.
Continue reading “Flea Market Finds and a Special Delivery from Zoe’s Toolbox!”
It’s crazy sock day!!! I don’t have on my crazy socks but I am rocking my #downsyndromeawareness shirt! Most of the kiddos have on some crazy socks to show their support for their extra special siblings and the other extra special people who were gifted with an extra chromosome.
I’ll admit that when we first got the news it was unexpected and I was upset, terrified, and a bit nervous but we had previously been told that what they expected she had would be incompatible with life.
Continue reading “National Down Syndrome Awareness Day and THM Tiramisu”
How in the world do we keep little miss occupied so we can get some school work done?
Homeschooling any number of kids can be difficult at times but when you add a baby or toddler to the mix it can get really crazy. Some days are easier than others as she is pretty good at keeping herself entertained but other days she can be extremely clingy and doesn’t want to be ‘left out’. We have to come up with some clever tricks to keep her entertained at times and sometimes we just take turns having someone play with her to keep her happy, although we don’t give in to every little whine or cry because sometimes she will figure out a way to entertain herself without us.
We have the basic routines that we have tried to stick to, even through the rough year that we had last year. During our numerous in-patient stays, I did my best to keep her routine as similar to our home routine as I could. It was difficult but it helped us both tremendously. Big sister also kept the kiddos at home on a regular schedule and that helped keep some of the chaos to a minimum.
Now that we are home and doing well we really had to get a little bit stricter with our routines as we’ve had a lot of adjustments to make. Shyanne missed her big brothers and sisters and they missed her but sometimes they get on each other’s nerves just as all siblings do. It’s a normal part of having a big family but it can lead to many distractions which are not good when we need to get certain things accomplished.
The basic areas we try to include in her daily schedule are:
Shyanne had a quick clinic visit today for a dressing change and labs. Everything went well with the exception of one lumen is not giving blood return so well will have to have that addressed next week when we return for admission.
It’s been another long day today. The team came for Shyanne around 7:00am… we weren’t expecting them for about an hour so we had to rush and finish …
Chemo Round 1: Day 1
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